Harper has been knocked out on sedatives most of the week... Trying to keep her asleep so she can heal and not move much to protect her sutures. Also it helped with pain management.
Yesterday, they weened her off and then started feedings. Unfortunately, overnight she did not respond well to the feed... since she has not been eating for the past 6+weeks, her stomach is going to take some time to become acclimated to Karen's milk. So, they needed to do another procedure on her today in the OR to put in a more permanent 'IV' which would allow the doctors to feed Harper with nutrients to supplement the little food that she will be eating. This has been done over the past 6 weeks with another line, but it had been in too long and had to be removed. Also, the one they did today was more 'permanent' and would last longer with less chance for infection.
We are still hopeful that she will be extubated at some point today, but with this procedure she may still be knocked out and not able to come off today. Also, we hope they will try to start feeding her again tonight or tomorrow, at least a little, so that we can keep making baby steps forward!
=W=
This is the story of overcoming the odds and the power of 'the will to live'. Our daughter continues to fight after being diagnosed with 'Hydrops Fetalis', given very little chance to live, arriving 6 weeks early and battling 'Chylothorax' each day.
We hope this story will give promise and inspiration to other parents who have been diagnosed similarly to Harper and are seeking a positive outlook.
"Every little thing gonna be all right!"
If this is your first time visiting our blog, please feel free to read the 'Preface' (1st post) from July 20th.
Keep at it Harper!! Mommies milk is baby crack! Praying for her and you, I just know that she'll be home soon.
ReplyDeleteLove, Suzy