We hope this story will give promise and inspiration to other parents who have been diagnosed similarly to Harper and are seeking a positive outlook.

"Every little thing gonna be all right!"

If this is your first time visiting our blog, please feel free to read the 'Preface' (1st post) from July 20th.

Wednesday, August 1, 2012

Keepin' Our Chins Up

There has not been much change in the amount of fluid output from Harper's chest tube over the last couple of days, so a couple of changes have been made to her treatments...
  • No more feeding :-(  Harper is going to have to have an empty stomach until we get this resolved.
  • The doctor briefly increased her dosage of meds, but then backed down a little after talking with a GI specialist.
  • They are putting a new "IV" in her arm that will reduce the number or pricks/pokes that they are going to have to give Harper.
So... I did a little more reading on research and publications about the drugs being used and, to me, it looks like there is still room to possibly increase the dose and also more time to allow the meds to do some more work.  The research from one physician showed that he put the dosage up to 10 micrograms/kg without side-effects and Harper is still only getting 3micrograms/kg.  Also, the average days on the drug was around 21 days and Harper has only been on for 7 now.  Based on this, I still see reason for us to stay positive and assured that she will pull through soon and not need to go in to surgery.

Let's keep hoping...  Keepin' our chins up...  =W=

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