We hope this story will give promise and inspiration to other parents who have been diagnosed similarly to Harper and are seeking a positive outlook.

"Every little thing gonna be all right!"

If this is your first time visiting our blog, please feel free to read the 'Preface' (1st post) from July 20th.

Monday, August 6, 2012

New Digs: Part II

After a quiet weekend, today was more eventful than we were expecting!  Last week, the doctor had made it clear that if there was not much progress toward improvement that we may be transferred to Main Campus of the Cleveland Clinic.  The weekend flew by and was overall uneventful.  So, this morning we met with the doctor mid-morning and he said he would make a call to Main Campus to see what their status was and we would probably be transferred at some point in the week.  After we all talked, I went off to practice and Karen stayed at the hospital.  I got a call from Karen just was we were wrapping up practice... "Umm... we are getting moved downtown within the hour."  I hopped in my truck and got back to the hospital right away!  We packed up the room and loaded everything into my truck.  By the time we finished that, they were ready to pack up Harper and get her moving.  What we were expecting to take a few days to organize was mobilized and completed within a couple hours.
Karen and I went home, dropped off my truck, unloaded our things, packed a small bag and headed down to the Clinic.  We knew that Harper's new home was going to be 'different' but it was still hard to swallow the differences.  We no longer know any of the nurses, doctors or staff, which is much different since we had gotten to know everyone at Hillcrest over the past 3 weeks.  We now have to pay for parking... boo hiss!  It's going to be a lot different now, with the biggest difference being that we no longer have our own private room; there are 4 babies to a 'pod' in the NICU at Main Campus.  It is much less comfortable spending time with Harper and is more awkward with other babies crying constantly around you.
But, despite all of these differences, we know that we were moved to the Main Campus for a reason; Harper's care is priority.  It may be less convenient and less comfortable for Karen, our guests/visitors and me, but we know that it is best for Harper.  She now can be monitored by the specialists needed (GI, CT, etc) but can also get the testing done (blood gas labs, output composition, MRI, etc) all with the specialists right there reading them in real time.  So, we hope that the doctors will put their heads together tomorrow and come up with a new game plan to put in to action to get our little girl better.
We made some big moves today... hopefully, we will see some big improvements as a result.  We trust that we will, otherwise we wouldn't have made the move in the first place.
We'll keep you updated!  xo =W=

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