We hope this story will give promise and inspiration to other parents who have been diagnosed similarly to Harper and are seeking a positive outlook.

"Every little thing gonna be all right!"

If this is your first time visiting our blog, please feel free to read the 'Preface' (1st post) from July 20th.

Tuesday, August 7, 2012

OK Main Campus... Show us what ya got!


When I showed up this morning, Harper was wide awake and excited to see Daddy!

Today was the first day to get settled in and let all the docs get a good look at our little girl. Things went well, considering, and everyone here still remains optimistic that surgery is a distant thought.
     Step 1: Increase her dosage of the meds. We will find out tonight what dosage that will be, but it sounds like they are prepared here to be aggressive with the medication to help Harper along.
     Step 2: Get an MRI. Harper is scheduled to go in tomorrow, but that could get shuffled depending on the schedule of the radiologists and anesthesiologists. For those of you who have not had an MRI before, the trick to it working is that you have to stay completely still. Any movement will make the picture blurry. So, as you can imagine, it is impossible to lay a baby on a noisy table with all kinds of sounds and different lights and expect them to lay completely still. Thusly, she will need to be sedated during the MRI, which means that she may possibly need to be intubated.
     We will see what tomorrow brings us and hopefully we will have a few more answers that will lead us to the ultimate goal of bringing our little girl home. We know that she is going to keep fighting, so of course we will do the same.

=W=

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